That means placing a wedge under my legs to prevent edema, assuring my overnight urinal is positioned properly to prevent leakage, and pouring wine and whiskey to prevent insomnia. She performs passive range-of-motion exercises, prepares dinner, and readies me for the night. ![]() ![]() Since my left hand can’t maintain a handheld device in a proper viewing angle, I am further relegated to Kindle content on my laptop.Īt around 5 p.m., my afternoon aide joins me. Since I lack the fine motor skills to turn pages, I am relegated to a Kindle library. An otherwise labor of love becomes purely labor.Īfter lunch I mostly read. Beyond that point, fatigue and diminishing returns set in, and my peak typing speed of six words per minute is dramatically reduced. My routine begins by writing until I take my lunch. After that, I’m on my own for seven or eight hours. If any of my pressure ulcers are open, the aide will tend to the bloody crime scene-like mess and clean up the trail. My lunch and daily water supply is placed next to me on a reachable table. I am served breakfast and given my vitamins and supplements, many delivered via spray. ![]() As a result, to keep me regular, my aide must manually extract any waste poised to exit.Īfter that mutual indignity is shared, I am showered and shaved, my teeth are brushed, I am clothed, and then I’m returned to home base. However, as my core strength is negligible, abdominal muscle assistance for the final exit push is no longer possible. The chair has an opening in the seat, enabling its dual purpose as an over-the-commode device. With the use of a Rifton tram, I am transferred into a shower wheelchair.
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